Our Story: From Rare Diagnoses to a Collective of Hope

Welcome to Breath In Bloom Collective—a space born from love, resilience, and the unwavering bond between a mother and her daughters!

My name is Kursti, and I’m the proud mom of 3 beautiful girls!

Maveryk, our spirited three-year-old, runs the show with her sharp vocabulary, infectious laughter, and just the right amount of sass to keep us all on our toes!

Brantleigh, our sweet and shining 10-year-old, lights up every room with her creative dance moves, contagious laughter, and the warmest hugs. She has a heart full of love—and makes sure everyone around her feels it!

And Jentri, our vibrant, strong, and inspiring 13-year-old girl. Our journey hasn’t been an easy one. For over seven years, we searched for answers to explain her chronic symptoms—doctors’ visits, tests, misdiagnoses, and so many moments of frustration and fear.

Eventually, we were given not one, but two rare diagnoses: Primary Ciliary Dyskinesia (PCD) and Atypical Cystic Fibrosis. Each of these conditions is rare on its own—but having both? That makes Jentri what some lovingly call a “medical unicorn.”

While the relief of finally having answers brought comfort, what followed was an unexpected emptiness: a lack of awareness, community, and representation. We scoured the internet for clothing, accessories, or anything that would help Jentri feel seen and empowered—but we found nothing that truly reflected her journey.

So, I decided to create it myself.

That’s how Breath In Bloom Collective came to life—a heartfelt project turned small business, dedicated to spreading awareness, advocating for those with rare lung conditions and other chronic illnesses while celebrating the unique beauty of every diagnosis.

Here, you’ll find thoughtful, creative designs inspired by real stories like Jentri’s. Our products aren’t just about style—they’re about support, visibility, and hope. They’re made for warriors, caretakers, medical unicorns, and the families who walk this rare and brave path.

If you’re reading this and you or someone you love is navigating a similar road: you’re not alone. You are seen, you are celebrated, and you have a place here with us.

Thank you for being a part of our story. Let’s continue to breathe, bloom, and raise awareness—together.

With love and purpose,
Kursti Young
Founder, Breath In Bloom Collective

Mom to Jentri, Brantleigh and Maveryk💙🌸

0 comments

Leave a comment

Please note, comments need to be approved before they are published.